Patient resources

The Somerville Heart Foundation:

The Somerville Heart Foundation is the only UK wide charity dedicated to supporting adults born with all types of Congenital Heart Disease. They also support young people transitioning into adult heart services.



Little Hearts Matter

Little Hearts Matter is the only national UK charity offering specialised support to anyone affected by the diagnosis of single ventricle heart condition




British Heart Foundation - Congenital Heart Disease Hub

This page features common questions about living with a congenital heart condition, with top tips from other young people and adults including:

  • having kids with a heart condition
  • mental health & your heart
  • Getting active & more




This website is designed mainly for young people with congenital heart disease. The aim is to help people feel more ready for transition from paediatric to adult care.

What is heart failure? BSH infographic

Available in English, Welsh, Polish, Punjabi, Bengali, Gujarati, Urdu

MRI my pacemaker

Patient info leaflet 'MRI & your pacemaker':

My Rhythm Device - ESC patient website

This website has been designed for patients with a cardiac implantable electronic device & their relatives. It provides an overview of cardiac devices, procedures & living with a CIED.


Boston Scientific have designed this website to provide a compressive overview of the S-ICD system, implant procedure, complications as well as living with a CIED.

Heart Failure Matters - ESC patient website

Translated into Arabic, Dutch, French, German, Greek, Portuguese, Polish, Spanish & Swedish with more languages coming soon

Scottish Obstetric Cardiology Network

Contraception in cardiovascular disease - information for patients & healthcare professionals

Information leaflets on heart disease in pregnancy. Includes general patient information leaflet for all women with CVD available in English, Arabic, Polish & Urdu. There is also an infographic & condition specific information.