The Somerville Heart Foundation:
The Somerville Heart Foundation is the only UK wide charity dedicated to supporting adults born with all types of Congenital Heart Disease. They also support young people transitioning into adult heart services.
Little Hearts Matter is the only national UK charity offering specialised support to anyone affected by the diagnosis of single ventricle heart condition
British Heart Foundation - Congenital Heart Disease Hub
This page features common questions about living with a congenital heart condition, with top tips from other young people and adults including:
- having kids with a heart condition
- mental health & your heart
- Getting active & more
This website is designed mainly for young people with congenital heart disease. The aim is to help people feel more ready for transition from paediatric to adult care.
What is heart failure? BSH infographic
Available in English, Welsh, Polish, Punjabi, Bengali, Gujarati, Urdu
https://www.bsh.org.uk/infographics
MRI my pacemaker
Patient info leaflet 'MRI & your pacemaker': https://mrimypacemaker.com/for-patients/during-the-scan/
My Rhythm Device - ESC patient website
This website has been designed for patients with a cardiac implantable electronic device & their relatives. It provides an overview of cardiac devices, procedures & living with a CIED.
https://www.myrhythmdevice.org/
Subcutaneous-ICD
Boston Scientific have designed this website to provide a compressive overview of the S-ICD system, implant procedure, complications as well as living with a CIED.
https://www.s-icd.co.uk/home.html
Heart Failure Matters - ESC patient website
Translated into Arabic, Dutch, French, German, Greek, Portuguese, Polish, Spanish & Swedish with more languages coming soon
https://www.heartfailurematters.org/
Scottish Obstetric Cardiology Network
Contraception in cardiovascular disease - information for patients & healthcare professionals
https://www.socn.scot.nhs.uk/patients/contraception1/
Information leaflets on heart disease in pregnancy. Includes general patient information leaflet for all women with CVD available in English, Arabic, Polish & Urdu. There is also an infographic & condition specific information.
https://www.socn.scot.nhs.uk/patients/thinking-about-pregnancy/